Update

We have switched Kylie's doctor and hospital. We are now going to Children's Memorial Hospital and seeing the head Pulmonologist there. They have increased her enzymes to one capsule, her zantanc, and have suggested that we begin her chest percussion therapy once a day. She will begin nebulizers daily before the winter.
Kylie now weighs 9 pounds. She's sleeping at least one 6 hour stretch each night, which is nice! She continues to be a sweet, easy baby . She loves to be held and loves to cuddle.
Tyler is finally 23 pounds. He amazes us with how much he talks and how much he loves to learn. He's beginning to "read" books to me, he loves singing songs, and he's recently learned to locate a handful of states on his US map placemat.
We are looking forward to a stress free Wisconsin Dells trip in September.