It's been a busy winter...we're ready for spring!

Tyler continues to be an energetic, talkative, and playful boy! I cannot believe he is soon turning 3. Tyler is so excited to be starting preschool in the fall. If it were up to him, he'd be going now! He amazes me with the things he says and what he picks up on. Tyler can spell 3 words- tyler, mom, and dad. He's working on spelling kylie's name too. He has memorized many of his books and loves when we read before naptime and bedtime. Lately Tyler has been waking up in the middle of the night and snuggling next to me, which is an aweful habit! Sometimes I march him back into his room, but other times I'm just too tired to deal with it. Hopefully we can break this habit soon.
Kylie is 9 months old. She weighs 16 pounds. She is officially on the loose and crawling and rolling all over the place. She has her 2 bottom teeth coming in. Kylie is very laid back, curious about everything, and always happy. She loves her brother and he can always make her laugh! In January Kylie had a pumonary function test performed. This told us that Kylie's lungs are very healthy right now. However, her dietian and pulmonolgist do not feel that she is gaining enough weight. People who are below the 25th percentile when comparing weight to height have worse lung function over time. 1 in 4 cfers end up with a feeding tube. Kylie is currently at the 10th percentile. We have been given 3 months to get her to really gain some weight or they will want to do a permament feeding tube. We are very upset over this and are doing what we can to put on some weight. Kylie is on high cal formula and we melt butter in her foods. We try to add as much fat as we can to every bite she takes. It's a lot of stress and pressure!
We are so fortunate to have our friends and family who have been supporting us with Kylie. I'm also so greatful to have found so many other moms and cfers out there who have helped me. We are working on a couple fundraisers right now. We are walking at the great stides walk in Naperville on May 22nd. To join our team or make a donation, please visit www.cff.org/great_strides/kerryeast.